Welcome

I use some acronyms here:

EDS = Ehlers-Danlos syndrome, a genetic connective tissue disorder

POTS = Postural Orthostatic Tachycardia syndrome, a form of dysautonomia (autonomic nervous system disorder).

Update after almost a year; still alive :)

Not much to report – EDS is the same; POTS is worse. Luckily the Vanderbilt Autonomic Clinic is local and I’ve been able to donate my body to science while I’m still alive.

I still keep on eye on new EDS and POTS research but mostly post at Twitter @Jilly since it requires less effort than logging in here etc.

If anyone is still reading here, I hope you all have a great holiday season with loads of salt.šŸ™‚

Chemistry Cat Sodium Joke

Ehlers Danlos and POTS links January 22, 2013

Have any of you with Postural Orthostatic Tachycardia Syndrome gotten the flu? If so, how bad did it get for you? Thanks.

Ehlers Danlos and POTS links January 15, 2013

Ehlers Danlos and POTS links January 10, 2012

 

Ehlers Danlos and POTS links January 6, 2013

Ehlers Danlos and POTS links January 2, 2013

Happy 2013 hope it is a great year for you, with good pain control and a lot of support.šŸ™‚
 

 

 

Ehlers Danlos and POTS links December 21, 2012

Merry Christmas everyone. Hope you all have a pain-free and vertical 2013.

 

Ehlers Danlos and POTS links December 20, 2012

Sorry there’s been a lack of updates. It’s been a bit rough.

 

Ehlers Danlos and POTS links October 30, 2012

Ehlers Danlos and POTS links October 2, 2012