Monthly Archives: July 2008

It’s been 4 months

So it has been about 4 months since my diagnosis. Unfortunately, I’ve had to start seeing a Dr. at a pain clinic at the local University hospital. BUT! I’ve found some things that have helped with the Ehlers-Danlos Syndrome. All have been provided by the pain clinic or the physical therapy clinic:

1. Trigger point injections. I was NOT looking forward to these & was a bit scared. But they weren’t bad at all and I got immediate relief. Yay! Most of my pain is muscular.

2. Myofascial release. Just had this a few days ago, and again, the relief was immediate. My mobility really improved as did the pain. I’m a weird combo of loose and tight.

3. Physical therapy in the pool — and swimming. When I move more, I feel better.

4. ollllllllllnj;m

My cat just typed that.

5. TENS Unit. Though maybe all that electricity will give me leukemia eventually hahaha.

Still to be determined:

Vitamin D and C.

Now onward to find out more about this pain in the ass. 🙂 Seeing a neurologist next month to check out my tailbone pain and associated leg weakness.