It’s been 4 months

So it has been about 4 months since my diagnosis. Unfortunately, I’ve had to start seeing a Dr. at a pain clinic at the local University hospital. BUT! I’ve found some things that have helped with the Ehlers-Danlos Syndrome. All have been provided by the pain clinic or the physical therapy clinic:

1. Trigger point injections. I was NOT looking forward to these & was a bit scared. But they weren’t bad at all and I got immediate relief. Yay! Most of my pain is muscular.

2. Myofascial release. Just had this a few days ago, and again, the relief was immediate. My mobility really improved as did the pain. I’m a weird combo of loose and tight.

3. Physical therapy in the pool — and swimming. When I move more, I feel better.

4. ollllllllllnj;m

My cat just typed that.

5. TENS Unit. Though maybe all that electricity will give me leukemia eventually hahaha.

Still to be determined:

Vitamin D and C.

Now onward to find out more about this pain in the ass. πŸ™‚ Seeing a neurologist next month to check out my tailbone pain and associated leg weakness.

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Comments

  • Radish King  On July 22, 2008 at 4:01 am

    I’m so glad swimming helps you feel better, Jilly. I hope the injections keep working. I think about you everyday, the work you do, and your bravery.love,Rebecca

  • Radish King  On July 22, 2008 at 4:02 am

    ps. you have bad glue and i have faulty wiring. i think we should take it on the road.xor

  • Jilly  On August 12, 2008 at 5:38 pm

    Thanks Rebecca. I am trying to go with the flow and kick ass simultaneously. xoxoxox

  • Radish King  On August 12, 2008 at 6:02 pm

    You’re doing a great job of it πŸ™‚ I was so glad to see a poetry hut post pop up.xor

  • Supervillainess  On August 31, 2008 at 5:34 am

    Hey dear! Glad the myofascial helped – I thought it might!

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