Monthly Archives: June 2009

Patients Are Not A Virtue

I’ve tried to avoid turning this blog into a total complain-a-thon but, hell, my life is literally falling apart in some sort of extended-release manner so here is another post.

Patient

adj.

1. Bearing or enduring pain, difficulty, provocation, or annoyance with calmness.
2. Marked by or exhibiting calm endurance of pain, difficulty, provocation, or annoyance.
3. Tolerant; understanding: an unfailingly patient leader and guide.
4. Persevering; constant: With patient industry, she revived the failing business and made it thrive.
5. Capable of calmly awaiting an outcome or result; not hasty or impulsive.
6. Capable of bearing or enduring pain, difficulty, provocation, or annoyance: “My uncle Toby was a man patient of injuries” (Laurence Sterne).

n.

1. One who receives medical attention, care, or treatment.
2. Linguistics. A noun or noun phrase identifying one that is acted upon or undergoes an action. Also called goal.
3. Archaic. One who suffers.

[Middle English pacient, from Old French, from Latin patiēns, patient-, present participle of patī, to endure.]

Since I last posted, I requested ADA Accommodations, lost my job, got my job back and got my ADA Accommodations (I think). It is taking a long time. I’ve missed a lot of work due to the POTS and EDS and have been on medical leave. Like good citizens we’ve saved $$ but it is pretty much gone since my health insurance costs almost $2,000 a month while I’ve been on leave & I’m the primary breadwinner with the mortgage payments etc.

Blah.

I’m doing good with doing my PT exercises and stuff.

Some articles:

Article on POTS in the newspaper: ‘Every step is a battle’ The disease: Postural Orthostatic Tachycardia Syndrome, or POTS

Article on EDS in the newspaper: Surviving the stigma of invisible disabilities

A University of Pennsylvania-collaboration of bioengineers studying the physical forces generated by individual cells has created a tiny micron–sized device that allows researchers to measure and manipulate cellular forces as assemblies of living cells reorganize themselves into tissues: Bioengineers Develop Microfabricated Device To Measure Cellular Forces During Tissue Development

Non-musculoskeletal symptoms in joint hypermobility syndrome. Indirect evidence for autonomic dysfunction?