Ehlers Danlos & POTS links Feb 06 2012

  • Rare Mutations May Help Explain Aneurysm in High-Risk Families
  • Rare Disease Day Feb 29
  • Raynaud’s Syndrome and POTS
  • A Limerick
  • Evergreen Neurologist Co-Authors New Study Linking Coffee, Genetics and Parkinson’s Disease Prevention
  • And an improvement…
  • New website: NIH Clinical Research Trials and You
  • I prayed for change…so I changed my mind…
  • Whole Exome Sequencing Identifies Cause of Metabolic Disease
  • The Poetry Entry
  • How the Spartacus welfare cuts campaign went viral
  • Work begins on barrier-free playground
  • Connective Issues (CI) National Marfan Foundation’s Winter 2011 Newsletter I am a member (EDS is a “related disorder“) and I have some Marfan’s overlap according to Dr. Francomano. Plus I just think they do a great job. Anyway, I am always really shocked at how much quality research the NMF funds. Look at all the grants! WOW
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